Horses With Stripes: Reframing Rare Disease Care.

A medical student’s narrative medicine essay contrasts encountering a rare disease during training versus experiencing it personally, reframing how rare disease care is understood.

• Why it matters: The piece addresses a gap in how clinicians’ perspectives on rare disease care may differ between clinical training and lived experience.
• What they did: It uses a first-person narrative to compare the author’s experiences as a medical student and resident with a personal encounter with one rare disease.
• The result: The essay suggests that personal experience can reshape understanding of rare disease care beyond what is learned through training alone.

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