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Adapting a Shared Digital Communication Intervention for Caregivers of Children with Physical Disabilities and Professionals through Co-design: A Workshop Study
medRxiv · · Preprint · Open access
Jensen, Johansen + 3 more
Abstract ↗AI summary
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An adapted shared digital communication intervention for caregivers of children with physical disabilities and cross-sector professionals incorporates structured communication, shared responsibility, and a human digital coordination function.
- Why it matters: Care is fragmented across sectors, and caregivers often coordinate by default, creating communication gaps and unclear coordination needs.
- What they did: Three co-design workshops with 26 participants (caregivers n=8, professionals n=14, software developers n=4) used thematic analysis and matrix analysis to derive design principles, then translated them into specifications.
- The result: The intervention is promising for improving communication and coordination, while addressing tensions around accessibility versus workload and transparency versus confidentiality.
The findingWhy it mattersWhat they didThe result
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