Co-designing CKD Talk Topics, a structured agenda-setting intervention for people with chronic kidney disease: "Keep It Simple, Stupid"

Chronic kidney disease Talk Topics, co-designed in a rural northern New England nephrology clinic, is viewed as helpful by 12 patients and 8 clinicians, yielding a six-topic structured agenda tool.

• Why it matters: Advanced CKD patients often struggle with communication and self-advocacy during nephrology visits, creating a need for collaborative agenda-setting that supports patient-centered discussions.
• What they did: Using participatory design with semi-structured interviews (Framework Analysis and Practical Thematic Analysis), the team developed CKD Talk Topics with patients in stages 4–5, care partners, and clinicians.
• The result: Participants emphasized simplicity, larger visuals, CKD-specific content, and flexibility, enabling a patient-centered, structured agenda-setting tool for prioritizing discussions during nephrology visits, with feasibility testing planned.

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